I am just doing some catching up and thought I would do a little June 1 update on ye olde "All About Matt."
In general things are good although neuropathy management is turning into a full time job for Matt, which while good - especially since he is unemployed - is still problematic and stressful. He is still taking tons of Gavapentin (sp?) and it really does make a difference; when he forgets for example the afternoon dosage (he takes pills three times a day) his feet start hurting within hours. Ouch. Gotta love that blue handicapped parking permit he got authorized by his primary physician!
In terms of prognosis, it's pretty much a given he will be on the drug for the rest of his life but we (me!) are hoping the dosage might go down with time...It's still only a year post-chemo, can you stand it?! Only time will tell....
He has also had another check up with Dr. Doogie (the ENT guy): he still has only 'soft' tissue in his neck. This is a good sign.
The most interesting piece here is that Matt has really noticed his allergies and hayfever tendencies are WAY down. We have had the windows open in the house on and off this spring (when it wasn't raining or cold) which historically we could never do due to the allergies kicking into high drive the minute pollen starts to pop. Not so this spring! Cathy is all excited as this means I can perhaps also light some smelly candles now, which again, I could never do as it would bug his nose too much.
Also, we are noticing his taste preferences have changed, which Doogie confirms is typical after radiation: between drying out the salivary glands and frying some of his (Matt's) tastebuds, things taste really different. Matt is doing a lot more cooking and we can tell that things for him taste pretty different than for me.
Anyway, still no sign of the return of the nasty and we are chipping away....Hope everyone is doing well as well. Signing off for June!
Tuesday, May 31, 2011
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