Sunday, July 11, 2010

A July update: 1 doctor down; 18 to go

We just returned from our summer vacation (camping/RVing on the south shores of Lake Superior) with lots of much needed sleep and relaxing for both of us. I reminded Matt, when we were wondering if we should feel guilty for sleeping in so much, that if our bodies didn't need it - we wouldn't be still sleeping at 10am in the morning. :-) This was one of the longest stretches without dr. appointments, for Matt, since October 2009 -yeow.

With this being said, since our return Matt has had a bunch of follow-up appointments, and happily things are finally looking really good (KNOCK ON WOOD). In a nutshell:
- saw Dr. Oa, his oncologist and while his hemoglobin is still low (from the chemo) he does not need to see her again, she says - yeah. So, medical oncology: COMPLETE.
- saw Dr. Ha, oral surgeon, and the "hole" in Matt's mouth is officially healing all by itself and looks good. Thank goodness. (Matt's final hyperbaric treatment was the Friday before we left.) His appointment included getting a CT scan of Matt's head to look for bone lesions, infection, tumors and it all looks nice and clear.
- Matt had his July PET scan and we already heard back from Dr. Doogie: it too is looking clear. Phew. Now, just another couple months (Sept will be the 6 months point which is big for this cancer).

The only thing that is still a bit up in the air is whether or not Matt should get a couple more weeks of oxygen therapy. We think it is helping Matt's fatigue factor (which is still pretty extreme - a combination of recoup from chemo/radiation as well as the low hemoglobin), and he is still hourly at work, so it wouldn't be the end of the world...However we are girding our loins to battle with insurance around this treatment as it is not covering all costs (and be forewarned: hyperbaric is nearly as expensive as radiation!!).

Other than all of this...the neuropathy is still present and pesky, but time will tell...Just slowly getting back to normal?!

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